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14  AN ACT concerning insurance; relating to cost reimbursement for nec-
15    essary food treatment products; [purchasing food treatment prod-
16    ucts authorized;] amending K.S.A. 1996 Supp. 65-180 and repealing
17    the existing section.
18
19  Be it enacted by the Legislature of the State of Kansas:
20    Section 1.  K.S.A. 1996 Supp. 65-180 is hereby amended to read as
21  follows: 65-180. The secretary of health and environment shall:
22    (a)  Institute and carry on an intensive educational program among
23  physicians, hospitals, public health nurses and the public concerning con-
24  genital hypothyroidism, galactosemia, phenylketonuria and other genetic
25  diseases detectable with the same specimen. This educational program
26  shall include information about the nature of such conditions and exam-
27  inations for the detection thereof in early infancy in order that measures
28  may be taken to prevent the mental retardation or morbidity resulting
29  from such conditions.
30    (b)  Provide recognized screening tests for phenylketonuria, galacto-
31  semia, hypothyroidism and such other diseases as may be appropriately
32  detected with the same specimen. The initial laboratory screening tests
33  for these diseases shall be performed by the department of health and
34  environment for all infants born in the state. Such services shall be per-
35  formed without charge.
36    (c)  Provide a follow-up program by providing test results and other
37  information to identified physicians; locate infants with abnormal new-
38  born screening test results; with parental consent, monitor infants to as-
39  sure appropriate testing to either confirm or not confirm the disease sug-
40  gested by the screening test results; with parental consent, monitor
41  therapy and treatment for infants with confirmed diagnosis of congenital
42  hypothyroidism, galactosemia, phenylketonuria or other genetic diseases
HB 2255--Am. by SCW
                                     

 1  being screened under this statute; and establish ongoing education and
 2  support activities for individuals with confirmed diagnosis of congenital
 3  hypothyroidism, galactosemia, phenylketonuria and other genetic dis-
 4  eases being screened under this statute and for the families of such in-
 5  dividuals.
 6    (d)  Maintain a registry of cases including information of importance
 7  for the purpose of follow-up services to prevent mental retardation or
 8  morbidity.
 9    (e)  Provide the necessary treatment product for diagnosed cases for
10  as long as medically indicated, when the product is not available through
11  other state agencies. In addition to diagnosed cases under this sec-
12  tion, diagnosed cases of maple syrup urine disease shall be in-
13  cluded as a diagnosed case under this subsection.
14    (f)  [(1)] Where Except for treatment products provided under
15  subsection (e), if the medically necessary food treatment product for
16  diagnosed cases must be purchased, the purchaser shall be reimbursed by
17  the department of health and environment for costs incurred up to $1,500
18  per year per diagnosed child age 18 or younger at 100% of the product
19  cost upon submission of a receipt of purchase identifying the company
20  from which the product was purchased. In addition to diagnosed cases
21  under this section, diagnosed cases of maple syrup urine disease
22  shall be included as a diagnosed case under this subsection. [For
23  a purchaser to be eligible for reimbursement under this subsection
24    (f)(1), the applicable income of the person or persons who have legal
25  responsibility for the diagnosed child shall not exceed 185% of the
26  poverty level established under the most recent poverty guidelines
27  issued by the federal department of health and human services.]
28    [(2)] [As an option to reimbursement authorized under this sub-
29  section [(f)(1)], the department of health and environment may
30  purchase food treatment products for distribution to diagnosed
31  children in an amount not to exceed $1,500 per year per diagnosed
32  child age 18 or younger. [For a diagnosed child to be eligible for
33  the distribution of food treatment products under this subsection
34    (f)(2), the applicable income of the person or persons who have legal
35  responsibility for the diagnosed child shall not exceed 185% of the
36  poverty level established under the most recent poverty guidelines
37  issued by the federal department of health and human services.
38    [(3)  In addition to diagnosed cases under this section, diagnosed
39  cases of maple syrup urine disease shall be included as a diagnosed
40  case under this subsection (f).] 
41    Sec. 2.  K.S.A. 1996 Supp. 65-180 is hereby repealed.
42    Sec. 3.  This act shall take effect and be in force from and after its
43  publication in the statute book.